This series of reports presents the findings from a survey conducted every five years on the experience of caregiving in the U.S. and its impact on caregivers’ lives.
Document (article, report, guide, etc.) in English
This issue brief (22 pages) provides an overview of care partnerships between direct care workers (personal care aides, home health aides, nursing assistants, etc.) and caregivers in the U.S. and shares recommendations on how they might be strengthened.
Document (article, report, guide, etc.) in English
Ce rapport (97 pages) présente les résultats d’un sondage sur l’expérience des PPA aux États-Unis en 2020 et les répercussions de la proche aidance dans leur quotidien.
Document (article, report, guide, etc.) in English
This report (20 pages) presents key findings from three roundtable discussions organized by the National Alliance for Caregiving in partnership with Health Leads. The main focus was how to better include caregivers in the development of patient-focused medical products in the United States.
Document (article, report, guide, etc.) in English
This document (9 pages) outlines the process leading to the creation of a two-part framework highlighting: 1) the pressure points caregivers are subject to during a crisis; and 2) the interventions designed to support them.
Document (article, report, guide, etc.) in English
Ce document (23 pages, en anglais) présente un cadre de référence développé aux États-Unis qui met de l’avant des recommandations politiques et des actions gouvernementales pour favoriser la santé et le bien-être des personnes proches aidantes.
Document (article, report, guide, etc.) in English
This research report (38 pages) presents the findings from a 2015 survey with U.S.-based caregivers who supported a person with Alzheimer’s disease, dementia or some other type of mental confusion, with a special focus on how their role affects their lives.
Document (article, report, guide, etc.) in English
This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.
Document (article, report, guide, etc.) in English
This report (44 pages) highlights the significant disparities in support, intensity of care provision, health and financial impacts among caregivers of colour and/or from 2SLGBTQIA+ communities, as well as across different income brackets and geographical areas.
Document (article, report, guide, etc.) in English
This report (50 pages) presents the findings from a 2015 survey on the experiences of U.S. caregivers who supported an adult with one or more mental health issues.
Document (article, report, guide, etc.) in English
This report (45 pages) looks at the challenges and needs facing those who support patients awaiting or who have received an organ, stem cell or bone marrow transplant in the United States.
Document (article, report, guide, etc.) in English
View my saved publications
