Parkinson’s Disease Caregiving in the U.S.

This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.

Year: 2025
Languages: English
Format: Document (article, report, guide, etc.)
Dimension(s) of caregiving:
  • Realities of caregiving
  • Repercussions of caregiving

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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

Si vous souhaitez parler à un⋅e professionnel⋅le spécialisé⋅e en proche aidance en lien avec une situation difficile, obtenir des références ou pour poser des questions, contactez le service Info-Aidant de l’Appui.

Ouvert du lundi au vendredi de 8h à 18h.

1 855 852-7784

[email protected]

www.lappui.org

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec's list of member organizations (in French only).

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This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.

This report is based on statistical data from the national survey Caregiving in the U.S. , the report compares the findings from PD caregivers and those who care for individuals with other conditions. Both samples were recalculated to be representative of the population. Ten PD caregivers also participated in semi-structured interviews.

Read the report
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