Knowledge portal on caregiving
This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!
To learn more about how we select and share third-party publications, see this document [currently in French only].
If you would like to recommend a publication for our knowledge portal, please write to us.
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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.
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To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).
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Les enjeux des proches aidants de personnes atteintes de cancer : Répondre à leurs besoins avec des interventions d’autogestion
In this webinar (in French), researcher Sylvie Lambert shares the findings from her studies on the unmet needs of those who care for cancer sufferers and presents two interventions aimed at supporting them.
Infographie interactive – Trajectoire des jeunes personnes proches aidantes
Cette infographie interactive et l’état des connaissances décrivent les moments charnières, les transitions et les défis que peuvent vivre les jeunes personnes proches aidantes ainsi que les facteurs influençant leur trajectoire.
Toward Better Recognition and Support: A Profile of Quebec’s Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
Interactive infographic – Trajectory of parent caregivers of autistic children
This interactive infographic charts the journey typically experienced by parents who support autistic children, highlighting the key moments, transitions and challenges they may face along the way.
Reducing the sense of obligation among caregivers: strategies for professionals and practitioners
This fact sheet (2 pages) explores the sense of obligation that caregivers may feel and the factors that can exacerbate the feeling. It offers professional strategies for helping caregivers cope with feeling “pressured” to assume the role and exploring their options.
Quelques pistes pour reconnaître, comprendre et soutenir les jeunes personnes proches aidantes
This webinar (in French), which was broadcast on October 26 2022, reviews the current scientific knowledge to better recognize, understand, and provide more effective support to young caregivers.
Caregiver Recognition and Self-Recognition: Challenges and Practices
These publications present the results of a literature review on the definitions, benefits, practices and challenges of caregiver recognition and self-recognition.
Helping caregivers self-identify: strategies for professionals and practitioners
Cette fiche (1 page) est basée sur le rapport « La reconnaissance et l’autoreconnaissance des personnes proches aidantes : enjeux et pratiques » (2023) de l’Observatoire québécois de la proche aidance.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.
Between Work, Children and Aging Parents: The Challenges of “Sandwich Generation” Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
What Is a Caregiver? Would You Know One to See One?
This infographic takes up the concepts presented in the definition of ‘caregiving’ in the Act to recognize and support caregivers.
Who are Quebec’s caregivers and what kinds of support do they provide? An age and gender-based analysis
This report (40 pages) profiles caregivers through the lens of age and gender and the support they provided in Quebec in 2018. It draws on a compilation carried out by the Institut de la statistique du Québec (ISQ) based on the Statistics Canada 2018 General Social Survey (GSS) – Caregiving and Care Receiving.
