Knowledge portal on caregiving

This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!

To learn more about how we select and share third-party publications, see this document [currently in French only].

If you would like to recommend a publication for our knowledge portal, please write to us.

Need help? →

CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open daily from 8 a.m. to 8 p.m.

1 855 852-7784
[email protected]
www.lappui.org/en/

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).

View my saved publications

2025

Authors:

Organizations:

Qu’est-ce qu’une personne proche aidante ? Mieux comprendre pour mieux se reconnaître

This webinar (31 min) and article promote recognition of the role of caregiver among parents who support a dependent child.

Document (article, report, guide, etc.)
in French

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2023

Authors:

Organizations:

Toward Better Recognition and Support: A Profile of Quebec’s Caregivers

This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.

Infographic
in English

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Image Mieux accompagner les PPA FR - Répertoire

2025

Authors:

Organizations:

Quebec Observatory on Caregiving

Helping caregivers who don’t identify as such: strategies for professionals and practitioners

This fact sheet (1 page), aimed at professionals who work with caregivers, addresses the reasons why some carers may be reluctant to identify with the label and proposes various approaches to improving their support.

Infographic
in English

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2023

Authors:

Organizations:

Les enjeux des proches aidants de personnes atteintes de cancer : Répondre à leurs besoins avec des interventions d’autogestion

In this webinar (in French), researcher Sylvie Lambert shares the findings from her studies on the unmet needs of those who care for cancer sufferers and presents two interventions aimed at supporting them.

Webinar
in French

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2024

Authors:

Janie Dussault

Organizations:

Trajectoire des Jeunes personnes proches aidantes (PPA)

This webinar (21 min) presents the preliminary findings of a literature review on young caregivers.

Webinar
in French

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2023

Authors:

Organizations:

Quebec Observatory on Caregiving

Caregiver Recognition and Self-Recognition: Challenges and Practices

These publications present the results of a literature review on the definitions, benefits, practices and challenges of caregiver recognition and self-recognition.

Document (article, report, guide, etc.)
in French

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2024

Authors:

Organizations:

Quebec Observatory on Caregiving

Bulletin de veille scientifique

Cette série de bulletins de veille annuelle présente une veille analytique des articles portant sur la proche aidance ou sur les personnes proches aidantes publiés par des chercheuses et chercheurs québécois·e·s.

Document (article, report, guide, etc.)
in English

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2023

Authors:

Quebec Observatory on Caregiving

Organizations:

Quebec Observatory on Caregiving

What Is a Caregiver? Would You Know One to See One?

This infographic takes up the concepts presented in the definition of ‘caregiving’ in the Act to recognize and support caregivers.

Infographic
in English

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2023

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Organizations:

Between Work, Children and Aging Parents: The Challenges of “Sandwich Generation” Caregivers

Infographic
in English

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2024

Authors:

Organizations:

Quebec Observatory on Caregiving

Interactive infographic – Trajectory of parent caregivers of autistic children

This interactive infographic charts the journey typically experienced by parents who support autistic children, highlighting the key moments, transitions and challenges they may face along the way.

Infographic
in French

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Image Diminuer le sentiment d'obligation FR - Répertoire

2025

Authors:

Organizations:

Quebec Observatory on Caregiving

Reducing the sense of obligation among caregivers: strategies for professionals and practitioners

This fact sheet (2 pages) explores the sense of obligation that caregivers may feel and the factors that can exacerbate the feeling. It offers professional strategies for helping caregivers cope with feeling “pressured” to assume the role and exploring their options.

Infographic
in English

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2022

Authors:

Organizations:

Quelques pistes pour reconnaître, comprendre et soutenir les jeunes personnes proches aidantes

This webinar (in French), which was broadcast on October 26 2022, reviews the current scientific knowledge to better recognize, understand, and provide more effective support to young caregivers.

Webinar
in French

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