Knowledge portal on caregiving
This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!
To learn more about how we select and share third-party publications, see this document [currently in French only].
If you would like to recommend a publication for our knowledge portal, please write to us.

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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.
To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open Monday to Friday from 8 a.m. to 6 p.m.
To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec's list of member organizations (in French only).
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Toward Better Recognition and Support: A Profile of Quebec’s Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
Interactive infographic – Trajectory of parent caregivers of autistic children
This interactive infographic charts the journey typically experienced by parents who support autistic children, highlighting the key moments, transitions and challenges they may face along the way.
Caregiver Recognition and Self-Recognition: Challenges and Practices
These publications present the results of a literature review on the definitions, benefits, practices and challenges of caregiver recognition and self-recognition.
What Is a Caregiver? Would You Know One to See One?
This infographic takes up the concepts presented in the definition of ‘caregiving’ in the Act to recognize and support caregivers.
Between Work, Children and Aging Parents: The Challenges of “Sandwich Generation” Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
Helping caregivers who don’t identify as such: strategies for professionals and practitioners
This fact sheet (1 page), aimed at professionals who work with caregivers, addresses the reasons why some carers may be reluctant to identify with the label and proposes various approaches to improving their support.
Les enjeux des proches aidants de personnes atteintes de cancer : Répondre à leurs besoins avec des interventions d’autogestion
In this webinar (in French), researcher Sylvie Lambert shares the findings from her studies on the unmet needs of those who care for cancer sufferers and presents two interventions aimed at supporting them.
Who are Quebec’s caregivers and what kinds of support do they provide? An age and gender-based analysis
This report (40 pages) profiles caregivers through the lens of age and gender and the support they provided in Quebec in 2018. It draws on a compilation carried out by the Institut de la statistique du Québec (ISQ) based on the Statistics Canada 2018 General Social Survey (GSS) – Caregiving and Care Receiving.
Fact Sheet: Financial Support for Caregivers
This fact sheet presents a round-up of the financial support currently available in Quebec for caregivers. It also identifies the challenges caregivers encounter in terms of accessing support as well as how support can impact their lives.
Bulletin de veille scientifique
Cette série de bulletins de veille annuelle présente une veille analytique des articles portant sur la proche aidance ou sur les personnes proches aidantes publiés par des chercheuses et chercheurs québécois·e·s.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.
Reducing the sense of obligation among caregivers: strategies for professionals and practitioners
This fact sheet (2 pages) explores the sense of obligation that caregivers may feel and the factors that can exacerbate the feeling. It offers professional strategies for helping caregivers cope with feeling “pressured” to assume the role and exploring their options.