Knowledge portal on caregiving
This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!
To learn more about how we select and share third-party publications, see this document [currently in French only].
If you would like to recommend a publication for our knowledge portal, please write to us.

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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.
To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open Monday to Friday from 8 a.m. to 6 p.m.
To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec's list of member organizations (in French only).
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Infographie interactive – Trajectoire des jeunes personnes proches aidantes
Cette infographie interactive et l’état des connaissances décrivent les moments charnières, les transitions et les défis que peuvent vivre les jeunes personnes proches aidantes ainsi que les facteurs influençant leur trajectoire.
Infographie interactive – Trajectoire des jeunes personnes proches aidantes
Cette infographie interactive et l’état des connaissances décrivent les moments charnières, les transitions et les défis que peuvent vivre les jeunes personnes proches aidantes ainsi que les facteurs influençant leur trajectoire.
Infographie interactive – Trajectoire des parents personnes proches aidantes d’enfants autistes
Cette infographie interactive décrit les moments charnières, les transitions et les défis que peuvent vivre les parents personnes proches aidantes d’enfants autistes ainsi que les facteurs influençant leur trajectoire.
Toward Better Recognition and Support: A Profile of Quebec’s Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
Quelques pistes pour reconnaître, comprendre et soutenir les jeunes personnes proches aidantes
This webinar (in French), which was broadcast on October 26 2022, reviews the current scientific knowledge to better recognize, understand, and provide more effective support to young caregivers.
Trajectoire des Jeunes personnes proches aidantes (PPA)
Ce webinaire (21 min) vise à présenter les résultats préliminaires d’une revue de littérature sur les jeunes personnes proches aidantes.
Helping caregivers who don’t identify as such: strategies for professionals and practitioners
Cette fiche met en lumière les raisons pour lesquelles certaines personnes proches aidantes ne s’identifient pas comme telles et propose des stratégies aux intervenant·e·s et aux professionnel·le·s afin de mieux les soutenir.
Les enjeux des proches aidants de personnes atteintes de cancer : Répondre à leurs besoins avec des interventions d’autogestion
In this webinar (in French), researcher Sylvie Lambert shares the findings from her studies on the unmet needs of those who care for cancer sufferers and presents two interventions aimed at supporting them.
Caregiver Recognition and Self-Recognition: Challenges and Practices
These publications present the results of a literature review on the definitions, benefits, practices and challenges of caregiver recognition and self-recognition.
Helping caregivers self-identify: strategies for professionals and practitioners
This infographic is based on the report “Caregiver Recognition and Self-Recognition: Challenges and Practices” (2023) by the Quebec Observatory on Caregiving.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
Ce rapport de l’Observatoire québécois de la proche aidance vise à documenter les enjeux éthiques reliés à la reconnaissance et à l’autoreconnaissance des personnes proches aidantes au Québec.
Reducing the sense of obligation among caregivers: strategies for professionals and practitioners
Cette fiche porte sur le sentiment d’obligation que peuvent ressentir les personnes proches aidantes et propose des stratégies aux intervenant·e·s et aux professionnel·le·s afin d’atténuer ce sentiment et mieux les soutenir.