Transplant Caregiving in the U.S.: A Call for System Change

This report (45 pages) looks at the challenges and needs facing those who support patients awaiting or who have received an organ, stem cell or bone marrow transplant in the United States.

Authors:

Organizations:

National Alliance for Caregiving

Year: 2023

Languages: English

Format: Document (article, report, guide, etc.)

Dimension(s) of caregiving:

Analysis of caregiving support
Realities of caregiving

Need help? →

CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open daily from 8 a.m. to 8 p.m.

1 855 852-7784
[email protected]
www.lappui.org/en/

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).

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This report (45 pages) looks at the challenges and needs facing those who support patients awaiting or who have received an organ, stem cell or bone marrow transplant in the United States. It also offers recommendations for improving caregiver support throughout the transplant process.

The report draws on information from various sources that include a literature review, an expert panel, focus groups and qualitative interviews with the caregivers.

Read the report

Like to know more?

See the second report on the topic: Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers.