Riding the Roller Coaster of Inflammatory Bowel Disease: a National Study of Caregivers or Individuals with Crohn’s Disease or Ulcerative Colitis

This report (40 pages) presents survey results on the experiences of caregivers who support a person living with inflammatory bowel disease (IBD).

Authors:

Michèle J. Banner

Organizations:

Year: 2019

Languages: English

Format: Document (article, report, guide, etc.), Infographic

Dimension(s) of caregiving:

Analysis of caregiving support
Society and caregiving

Need help? →

CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open daily from 8 a.m. to 8 p.m.

1 855 852-7784
[email protected]
www.lappui.org/en/

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).

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This report (40 pages) presents survey results on the experiences of caregivers who support a person living with inflammatory bowel disease (IBD).

The findings are based on fall 2018 survey data from 728 adult caregivers (age 18 and up) living in the U.S. who reported providing unpaid care for someone with IBD.

An infographic summarizing key data from the report is also available.

Read the report

See the infographic

Curious for more?

A guide A guide (8 pages) for caregivers and professionals has been developed based on the data in the report. This guide proposes four strategies to better integrate and support family caregivers who look after a loved one living with inflammatory bowel disease.