Quebec Observatory on Caregiving - Knowledge portal on caregiving
Interactive infographic – Trajectory of parent caregivers of autistic children
This interactive infographic charts the journey typically experienced by parents who support autistic children, highlighting the key moments, transitions and challenges they may face along the way.
Caregiver Recognition and Self-Recognition: Challenges and Practices
These publications present the results of a literature review on the definitions, benefits, practices and challenges of caregiver recognition and self-recognition.
What Is a Caregiver? Would You Know One to See One?
This infographic takes up the concepts presented in the definition of ‘caregiving’ in the Act to recognize and support caregivers.
Between Work, Children and Aging Parents: The Challenges of “Sandwich Generation” Caregivers
This infographic highlights key findings from the statistical report "Who are Quebec’s caregivers and what kinds of support do they provide? An age- and gender-based analysis" (2023) published by the Quebec Observatory on Caregiving.
Helping caregivers who don’t identify as such: strategies for professionals and practitioners
This fact sheet (1 page), aimed at professionals who work with caregivers, addresses the reasons why some carers may be reluctant to identify with the label and proposes various approaches to improving their support.
Les enjeux des proches aidants de personnes atteintes de cancer : Répondre à leurs besoins avec des interventions d’autogestion
In this webinar (in French), researcher Sylvie Lambert shares the findings from her studies on the unmet needs of those who care for cancer sufferers and presents two interventions aimed at supporting them.
Who are Quebec’s caregivers and what kinds of support do they provide? An age and gender-based analysis
This report (40 pages) profiles caregivers through the lens of age and gender and the support they provided in Quebec in 2018. It draws on a compilation carried out by the Institut de la statistique du Québec (ISQ) based on the Statistics Canada 2018 General Social Survey (GSS) – Caregiving and Care Receiving.
Fact Sheet: Financial Support for Caregivers
This fact sheet presents a round-up of the financial support currently available in Quebec for caregivers. It also identifies the challenges caregivers encounter in terms of accessing support as well as how support can impact their lives.
Bulletin de veille scientifique
Cette série de bulletins de veille annuelle présente une veille analytique des articles portant sur la proche aidance ou sur les personnes proches aidantes publiés par des chercheuses et chercheurs québécois·e·s.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.
Reducing the sense of obligation among caregivers: strategies for professionals and practitioners
This fact sheet (2 pages) explores the sense of obligation that caregivers may feel and the factors that can exacerbate the feeling. It offers professional strategies for helping caregivers cope with feeling “pressured” to assume the role and exploring their options.
Qu’est-ce qu’une personne proche aidante ? Mieux comprendre pour mieux se reconnaître
This webinar (31 min) and article promote recognition of the role of caregiver among parents who support a dependent child.
Helping caregivers self-identify: strategies for professionals and practitioners
Cette fiche (1 page) est basée sur le rapport « La reconnaissance et l’autoreconnaissance des personnes proches aidantes : enjeux et pratiques » (2023) de l’Observatoire québécois de la proche aidance.
Infographie interactive – Trajectoire des jeunes personnes proches aidantes
Cette infographie interactive et l’état des connaissances décrivent les moments charnières, les transitions et les défis que peuvent vivre les jeunes personnes proches aidantes ainsi que les facteurs influençant leur trajectoire.
Quelques pistes pour reconnaître, comprendre et soutenir les jeunes personnes proches aidantes
This webinar (in French), which was broadcast on October 26 2022, reviews the current scientific knowledge to better recognize, understand, and provide more effective support to young caregivers.
Infographie interactive – Trajectoire des jeunes personnes proches aidantes
Cette infographie interactive et l’état des connaissances décrivent les moments charnières, les transitions et les défis que peuvent vivre les jeunes personnes proches aidantes ainsi que les facteurs influençant leur trajectoire.
Trajectoire des Jeunes personnes proches aidantes (PPA)
Ce webinaire (21 min) vise à présenter les résultats préliminaires d’une revue de littérature sur les jeunes personnes proches aidantes.