Knowledge portal on caregiving
This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!
To learn more about how we select and share third-party publications, see this document [currently in French only].
If you would like to recommend a publication for our knowledge portal, please write to us.
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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.
Bilingual; open daily from 8 a.m. to 8 p.m.
To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).
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Les troubles neurocognitifs : un parcours adapté du repérage au traitement
This research brief (21 pages) presents innovative international approaches designed to improve the experience of people living with a neurocognitive disorder and their caregivers.
Qu’est-ce qu’une personne proche aidante ? Mieux comprendre pour mieux se reconnaître
This webinar (31 min) and article promote recognition of the role of caregiver among parents who support a dependent child.
Reducing the sense of obligation among caregivers: strategies for professionals and practitioners
This fact sheet (2 pages) explores the sense of obligation that caregivers may feel and the factors that can exacerbate the feeling. It offers professional strategies for helping caregivers cope with feeling “pressured” to assume the role and exploring their options.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.
A National Caregiving Strategy for Canada
This report (116 pages) and its accompanying summary (12 pages) make the case for a national caregiving strategy in Canada.
National Carer Strategy 2024-2034
This report (53 pages) presents the Australian government’s 2024–2034 national caregiver support strategy.
Building Community Capacity for Dementia Inclusion: An Action Guide Filtres
This guide (149 pages) and its summary (24 pages) were created to support organizations wishing to combat stigma and make their programs more inclusive for people with dementia and their caregivers.
The Meaning of Care and Care Work in Nunavut
This report (32 pages) and its accompanying infographic (1 page) present the findings of a participatory study to assess the state of caregiving practices and support services for individuals with disabilities in Nunavut.
Perte d’autonomie : quels effets sur la santé des proches aidants ?
This report (28 pages) summarizes a study led in France on caregivers who support one or more older adults living at home.
A Fair Deal for Carers: Principles for employing informal carers
This report (24 pages) examines the increasingly vital role of informal caregivers within European health systems and explores how the role might be formalized through measures based on existing employment frameworks.
Taking the next step for working carers Introducing a new right to paid Carer’s Leave
This report (32 pages) makes the case for stronger measures to support the retention and well-being of caregivers living and working in the UK.
Table ronde – La proche aidance : une réalité familiale à considérer au travail
This webinar (1:06) addresses the work-life-caregiving balance in Quebec.
