Knowledge portal on caregiving
This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!
To learn more about how we select and share third-party publications, see this document [currently in French only].
If you would like to recommend a publication for our knowledge portal, please write to us.
Need help? →
CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.
Bilingual; open daily from 8 a.m. to 8 p.m.
To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).
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Scientific Watch Bulletin
Released yearly, this series of watch bulletins presents an analytical review of the studies on caregiving or caregivers published by Quebec-based researchers.
Who Benefits from Paid Family Leave? The Impact on Informal and Formal Care for Middle-Aged and Older Adults with Disabilities
This report (45 pages) analyzes the impact of paid family leave (PFL) policies on informal and formal care for middle-aged and older adults with disabilities in the U.S.
Les demandes anticipées d’aide médicale à mourir : les enjeux pour les personnes et leurs proches
This webinar (1h 10m) presented by the Federation of Quebec Alzheimer Societies examines the clinical, social and ethical questions that the anticipated requests for medical assistance in dying (MAID) may raise for both individuals diagnosed with major neurocognitive disorders and their caregivers.
Les demandes anticipées d’aide médicale à mourir : les enjeux pour les personnes et leurs proches
This webinar (1h 10m) presented by the Federation of Quebec Alzheimer Societies examines the clinical, social and ethical questions that the anticipated requests for medical assistance in dying (MAID) may raise for both individuals diagnosed with major neurocognitive disorders and their caregivers.
Fostering individual health and financial well-being through robust care systems
This policy brief (7 pages) argues for the need for all countries to invest in and implement well-structured long-term care systems.
Dementia in refugees and migrants: epidemiology, public health implications and global responses
This report (126 pages) explores the challenges faced by older refugees and migrants with dementia and their caregivers, with a particular focus on cultural and structural barriers to accessing health services.
Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification
This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.
The Experiences of Social Exclusion and Inclusion Among People Aging with Neurodiversity and Their Families
This web feature presents the publications resulting from the research project, “Experiences of Social Exclusion and Inclusion Among People Aging with Neurodiversity and Their Families.”
Research Snapshot: Family Caregiving Experiences in Rural New Brunswick
This research summary (3 pages) looks at a study on the impact of providing home care in rural regions of New Brunswick.
Parkinson’s Disease Caregiving in the U.S.
This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.
Outil Parent aidant | Cap 18 ans
This online resource aims to support the parent caregivers of special-needs children during the transition to adulthood.
Moms in the Sandwich Generation
This report (31 pages) examines the experience of mothers dealing with the complexity of being “sandwiched” by dual caregiving responsibilities — i.e., simultaneously supporting both children and one or more adult dependents — while holding down a job.
