Knowledge portal on caregiving

This knowledge portal provides access to reliable, objective and relevant publications on caregiving to stimulate action, inform decision-making and fuel research. Presented in varying formats, the publications originate from Quebec, Canada and abroad, are intended for all of the Observatory’s target audiences and cover all five dimensions of caregiving. New publications are added continuously. Stay tuned!

To learn more about how we select and share third-party publications, see this document [currently in French only].

If you would like to recommend a publication for our knowledge portal, please write to us.

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CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.
Bilingual; open daily from 8 a.m. to 8 p.m.

1 855 852-7784
[email protected]
www.lappui.org/en/

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec’s list of member organizations (in French only).

View my saved publications

Les demandes anticipées d'aide médicale FR - Répertoire

2025

Authors:

Maryse Soulières

Organizations:

Federation of Quebec Alzheimer Societies

Les demandes anticipées d’aide médicale à mourir : les enjeux pour les personnes et leurs proches

This webinar (1h 10m) presented by the Federation of Quebec Alzheimer Societies examines the clinical, social and ethical questions that the anticipated requests for medical assistance in dying (MAID) may raise for both individuals diagnosed with major neurocognitive disorders and their caregivers.

Webinar
in French

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2025

Organizations:

Dementia in refugees and migrants: epidemiology, public health implications and global responses

This report (126 pages) explores the challenges faced by older refugees and migrants with dementia and their caregivers, with a particular focus on cultural and structural barriers to accessing health services.

Document (article, report, guide, etc.)
in English

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2025

Authors:

Organizations:

Quebec Observatory on Caregiving

Recognition Without Coercion : Navigating Need, Obstacles and Ethical Dilemmas in Caregiver Recognition and Self-Identification

This report (46 pages) from the Quebec Observatory on Caregiving explores the ethical issues related to caregiver recognition and self-recognition, primarily in the Quebec context.

Document (article, report, guide, etc.)
in French

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2025

Authors:

Organizations:

National Alliance for Caregiving

Parkinson’s Disease Caregiving in the U.S.

This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.

Document (article, report, guide, etc.)
in English

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2025

Organizations:

Outil Parent aidant | Cap 18 ans

This online resource aims to support the parent caregivers of special-needs children during the transition to adulthood.

Web document or format
in French

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2024

Organizations:

Canadian Centre for Caregiving Excellence (CCCE)

Caring in Canada – Survey insights from caregivers and care providers across Canada

This report (78 pages) provides statistical indicators on the situation of Canadian caregivers in 2023 with a view to better supporting them through adapted practices and policies.

Document (article, report, guide, etc.)
in English

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Image Carer Wellbeing Survey ANG - Répertoire

2024

Authors:

Organizations:

Caring for Others and Yourself: Carer Wellbeing Survey

Cette série de rapports statistiques (en anglais) présente la situation des personnes proches aidantes en Australie, année après année, à partir des données de sondage.

Document (article, report, guide, etc.)
in English

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2024

Authors:

Organizations:

SHERPA University Institute

The Experience of Informal and Family Caregivers in Quebec who Belongs to an Ethnocultural Minority Group

This report (226 pages) and its summary (41 pages) document the experiences of individuals from ethnocultural minority backgrounds who care for someone (PAGEMA caregivers) in Quebec.

Document (article, report, guide, etc.)
in English

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2024

Authors:

Léa Toulemon

Organizations:

Perte d’autonomie : quels effets sur la santé des proches aidants ?

This report (28 pages) summarizes a study led in France on caregivers who support one or more older adults living at home.

Document (article, report, guide, etc.)
in French

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2024

Authors:

Organizations:

Proche aidance-travail : comprendre la réalité des parents d’enfants à besoin de soutien particulier

This webinar (1:04) explores the challenges of balancing parenting, caregiving and work among the parents of children with special needs in Quebec.

Webinar
in French

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2024

Organizations:

Poverty and financial hardship of unpaid carers in the UK

This report (60 pages) looks at the issue of poverty among unpaid carers in the UK.

Document (article, report, guide, etc.)
in English

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2024

Organizations:

Carers UK

No choice but to care: Carers Week report 2024

This report (44 pages) looks into the state of caregiving in the UK and provides policy recommendations on measures to implement to support caregiver wellness.

Document (article, report, guide, etc.)
in English

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