Caregiving in a palliative or end-of-life context poses immense challenges, including having to witness a loved one’s progressive decline. The end of life very often intensifies the caregiving role, which can range from being present and listening to assisting with care, serving as coordinator, maintaining a bedside vigil, and making crucial decisions.
To better document this reality, we have developed a new interactive infographic titled “Trajectory of palliative and end-of-life caregivers.” It is based on the latest scientific findings, insights from the Comité de proche aidance en contexte palliatif et de fin de vie (Committee on Caregiving in Palliative and End-of-Life Care) - in collaboration with Proche aidance Québec - as well as the experiences and perspectives shared by caregivers during a workshop.
This infographic provides a better understanding of how the role and experiences of caregivers evolve over the course of their journey. It also provides guidance to help identify their needs, inform caregiving practices, and promote tailored support throughout their trajectory.
A detailed report accompanying this infographic will be published in winter of 2027.
