Parkinson’s Disease Caregiving in the U.S.

This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.

Authors:

Organizations:

National Alliance for Caregiving

Year: 2025

Languages: English

Format: Document (article, report, guide, etc.)

Dimension(s) of caregiving:

Realities of caregiving
Repercussions of caregiving

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To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.

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To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec's list of member organizations (in French only).

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This report (57 pages) documents the experience of caregivers in the United States who support people with Parkinson’s disease (PD), with the focus on their unique challenges and the responsibilities that characterize their journey of care.

This report is based on statistical data from the national survey Caregiv ing in the U.S. , the report compares the findings from PD caregivers and those who care for individuals with other conditions. Both samples were recalculated to be representative of the population. Ten PD caregivers also participated in semi-structured interviews.

Read the report