Reimagining Clinical Trial Recruitment Through a Family-Centered Lens: Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity

This report (20 pages) presents key findings from three roundtable discussions organized by the National Alliance for Caregiving in partnership with Health Leads. The main focus was how to better include caregivers in the development of patient-focused medical products in the United States.

Organizations:

Year: 2022

Languages: English

Format: Document (article, report, guide, etc.)

Dimension(s) of caregiving:

Analysis of caregiving support
Society and caregiving

Need help? →

CALL 811 (Info-Santé/Info-Social). If you need support or have concerns or questions about your health or that of a family member or friend, call 811 to speak to a nurse or psychosocial worker. Bilingual and available 24 hours a day, 7 days a week, it’s free and confidential.

To speak to a caregiver counselor about a difficult situation, ask questions or get a referral, call l’Appui’s Caregiver Support Helpline.

Bilingual; open Monday to Friday from 8 a.m. to 6 p.m.

1 855 852-7784

[email protected]

www.lappui.org

To find community resources offering caregiving information and support near you, consult l’Appui’s Resource Directory or Proche aidance Québec's list of member organizations (in French only).

!

This report (20 pages) presents key findings from three roundtable discussions organized by the National Alliance for Caregiving in partnership with Health Leads. The main focus was how to better include caregivers in the development of patient-focused medical products in the United States.

Held in November and December 2021, the roundtables brought together health and social service professionals, clinical trial experts and caregiver experts, invited to contribute due to their key roles in medical decision-making and other health care tasks. Participants explored how caregivers could contribute more effectively to the development of medical products at different stages of the clinical trial process.

Read the report