{"id":6475,"date":"2024-01-30T15:57:57","date_gmt":"2024-01-30T20:57:57","guid":{"rendered":"https:\/\/observatoireprocheaidance.ca\/?post_type=knowledge_directory&#038;p=6475"},"modified":"2025-09-15T15:18:58","modified_gmt":"2025-09-15T19:18:58","slug":"experience-des-personnes-qui-vivent-avec-un-trouble-neurocognitif-au-quebec-etat-des-connaissances","status":"publish","type":"knowledge_directory","link":"https:\/\/observatoireprocheaidance.ca\/en\/caregiving-knowledge-portal\/experience-des-personnes-qui-vivent-avec-un-trouble-neurocognitif-au-quebec-etat-des-connaissances\/","title":{"rendered":"Exp\u00e9rience des personnes qui vivent avec un trouble neurocognitif au Qu\u00e9bec : \u00c9tat des connaissances"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;\u200e&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; min_height=&#8221;365px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_padding=&#8221;||21px|||&#8221; global_colors_info=&#8221;{}&#8221;]<span class=\"TextRun SCXW87367950 BCX0\" lang=\"FR-CA\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW87367950 BCX0\">This<\/span><\/span> <a href=\"https:\/\/www.inesss.qc.ca\/fileadmin\/doc\/INESSS\/Rapports\/Usage_optimal\/INESSS_Alzheimer_TNC_EC_VF.pdf\" target=\"_blank\" rel=\"noopener\"><strong><span class=\"NormalTextRun SCXW87367950 BCX0\"><span class=\"TextRun SCXW87367950 BCX0\" lang=\"FR-CA\" data-contrast=\"auto\">report<\/span><\/span><\/strong><\/a> <span class=\"TextRun SCXW87367950 BCX0\" lang=\"FR-CA\" data-contrast=\"auto\" xml:lang=\"FR-CA\"><span class=\"NormalTextRun SCXW87367950 BCX0\">(45 pages, in French) presents the results of a research initiative aimed at <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">gaining a better understanding <\/span><span class=\"NormalTextRun CommentStart CommentHighlightPipeRest CommentHighlightRest SCXW87367950 BCX0\">of the needs <\/span><span class=\"NormalTextRun CommentHighlightPipeRest SCXW87367950 BCX0\">and expectations <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">in terms of care and services <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">people living with a <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">neurocognitive disorder, more specifically <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">Alzheimer&#8217;s disease<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">,<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\"> and <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">their <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">caregivers<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">.  <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">It <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">sheds <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">light on <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">several aspects<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\"> of their experience<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">, including <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">their relationship with the dis<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">ease,<\/span> <span class=\"NormalTextRun SCXW87367950 BCX0\">\u200e <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">family<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\"> relationships,<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">access to health care and services,<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\"> and <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">support <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">received <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">from the health and social services network<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">.  <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">The findings are based on a rapid review of the scientific and grey literature <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">and on<\/span> <span class=\"NormalTextRun SCXW87367950 BCX0\">a group discussion with a non-<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">representative sample <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">of two people living with <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">Alzheimer&#8217;s disease <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">\u200eand<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\"> four <\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">caregivers<\/span><span class=\"NormalTextRun SCXW87367950 BCX0\">.  <\/span><\/span><span class=\"EOP SCXW87367950 BCX0\" data-ccp-props=\"{\"134245418\":true,\"201341983\":0,\"335559739\":0,\"335559740\":259}\"> <\/span>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.inesss.qc.ca\/fileadmin\/doc\/INESSS\/Rapports\/Usage_optimal\/INESSS_Alzheimer_TNC_EC_VF.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Consult this publication (pdf)&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-29px|||||&#8221; custom_padding=&#8221;||6px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-28px|||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><a href=\"https:\/\/www.inesss.qc.ca\/fileadmin\/doc\/INESSS\/Rapports\/Usage_optimal\/INESSS_Alzheimer_TNC_Summary.pdf\" target=\"_blank\" rel=\"noopener\">\u200eConsult the abstract in English (pdf)<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This report (45 pages, in French) presents the results of a research initiative aimed at gaining a better understanding of the needs and expectations in terms of care and services of people living with Alzheimer&#8217;s disease and their caregivers. 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