{"id":4120,"date":"2019-06-08T13:59:38","date_gmt":"2019-06-08T17:59:38","guid":{"rendered":"https:\/\/observatoireprocheaidance.ca\/knowledge_directory\/pour-ne-pas-seulement-survivre-mais-vivre-avec-qualite-guide-de-soutien-aux-personnes-proches-aidantes-accompagnement-en-soins-palliatifs-et-de-fin-de-vie\/"},"modified":"2026-07-09T11:08:30","modified_gmt":"2026-07-09T15:08:30","slug":"pour-ne-pas-seulement-survivre-mais-vivre-avec-qualite-guide-de-soutien-aux-personnes-proches-aidantes-accompagnement-en-soins-palliatifs-et-de-fin-de-vie","status":"publish","type":"knowledge_directory","link":"https:\/\/observatoireprocheaidance.ca\/en\/caregiving-knowledge-portal\/pour-ne-pas-seulement-survivre-mais-vivre-avec-qualite-guide-de-soutien-aux-personnes-proches-aidantes-accompagnement-en-soins-palliatifs-et-de-fin-de-vie\/","title":{"rendered":"Pour ne pas seulement survivre, mais vivre avec qualit\u00e9 ! Guide de soutien aux personnes proches aidantes \u2013 accompagnement en soins palliatifs et de fin de vie."},"content":{"rendered":"\n<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section preset--group--divi-section--divi-transition--default\"><div class=\"et_pb_row_0 et_pb_row et_block_row preset--group--divi-row--divi-transition--default\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough preset--group--divi-column--divi-transition--default\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><p><span data-contrast=\"auto\">This<\/span> <a href=\"https:\/\/www.santeestrie.qc.ca\/clients\/SanteEstrie\/soins-services\/Pour_tous\/Soins_palliatifs_et_de_fin_de_vie\/Guide_Soutien_Proches_aidants2019.pdf\" target=\"_blank\" rel=\"noopener\"><b><span data-contrast=\"auto\">guide<\/span><\/b><\/a> <span data-contrast=\"auto\">(42 pages, in French) provides caregivers with information on the various stages of supporting a loved one through palliative or end-of-life care. The guide,<\/span><span data-contrast=\"auto\">which is divided into three sections corresponding to the three stages of the support journey (shock, the ups and downs, and the end of life), offers tools,<\/span><span data-contrast=\"auto\">\u200e resources and thoughts on how to better support caregivers who must go through this process.<\/span><span data-ccp-props=\"{\"134245418\":true,\"201341983\":0,\"335551550\":6,\"335551620\":6,\"335559739\":160,\"335559740\":259}\"> <\/span><\/p>\n<\/div><\/div><div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><p><i><span data-contrast=\"auto\">Note that the guide was created specifically to meet the needs of caregivers living in the area covered by the CIUSSS de l\u2019Estrie\u2013CHUS; as a result, the resources it lists are local. o see the resources available in other regions, consult the <a href=\"https:\/\/repertoire.lappui.org\/en\" target=\"_blank\" rel=\"noopener\"><strong>L\u2019Appui\u2019s caregiver resource directory.<\/strong><\/a><\/span><\/i><span data-ccp-props=\"{\"134245418\":true,\"201341983\":0,\"335551550\":6,\"335551620\":6,\"335559739\":160,\"335559740\":259}\"> <\/span><\/p>\n<\/div><\/div><div class=\"et_pb_module et_pb_button_module_wrapper et_pb_button_0_wrapper preset--group--divi-button--divi-transition--default_wrapper preset--module--divi-button--default_wrapper\"><a class=\"et_pb_button_0 et_pb_button et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-button--divi-transition--default preset--module--divi-button--default\" href=\"https:\/\/www.santeestrie.qc.ca\/clients\/SanteEstrie\/soins-services\/Pour_tous\/Soins_palliatifs_et_de_fin_de_vie\/Guide_Soutien_Proches_aidants2019.pdf\" target=\"_blank\" data-icon=\"$\">See the guide (in French)<\/a><\/div><div class=\"et_pb_text_2 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><p><span data-contrast=\"auto\">A <strong><a href=\"https:\/\/youtu.be\/okFvYOMiYd8\" target=\"_blank\" rel=\"noopener\">video<\/a><\/strong> (9 min., in French) on the guide\u2019s development was published on December 3, 2019 by the <\/span><span data-contrast=\"none\">Communaut\u00e9 de pratique virtuelle Continuum a\u00een\u00e9s. The presenter is<\/span><span data-contrast=\"auto\"> Mona Abaoui, knowledge broker for the Centre int\u00e9gr\u00e9 universitaire de sant\u00e9 et de services sociaux de l\u2019Estrie \u2013 Centre hospitalier universitaire de Sherbrooke (CIUSSS de l\u2019Estrie\u2013CHUS). The guide\u2019s development is also detailed in a caregiving practice community <strong><a href=\"https:\/\/observatoireprocheaidance.ca\/wp-content\/uploads\/2023\/06\/IF3_spfv.pdf\" target=\"_blank\" rel=\"noopener\">publication<\/a><\/strong> (in French) released in 2021 by the knowledge transfer team at the Institut Universitaire de premi\u00e8re ligne en sant\u00e9 et services sociaux (IUPLSSS), part of the CIUSSS de l\u2019Estrie\u2013CHUS. <\/span><\/p>\n<\/div><\/div><div class=\"et_pb_module et_pb_button_module_wrapper et_pb_button_1_wrapper preset--group--divi-button--divi-transition--default_wrapper preset--module--divi-button--default_wrapper\"><a class=\"et_pb_button_1 et_pb_button et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-button--divi-transition--default preset--module--divi-button--default\" href=\"https:\/\/youtu.be\/okFvYOMiYd8\" target=\"_blank\" data-icon=\"$\">Watch the video (in French)<\/a><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>This guide (42 pages, in French) provides caregivers with information on the various stages of supporting a loved one through palliative or end-of-life care. <\/p>\n","protected":false},"featured_media":2987,"parent":0,"template":"","format":[51,49],"meta":{"_acf_changed":false,"footnotes":""},"auteur":[272,273],"organisme":[187],"class_list":["post-4120","knowledge_directory","type-knowledge_directory","status-publish","has-post-thumbnail","hentry","auteur-mona-abaoui-en","auteur-naomi-dufour-en","organisme-ciusss-de-lestrie-chus"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pour ne pas seulement survivre, mais vivre avec qualit\u00e9 ! 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