{"id":13379,"date":"2019-09-18T16:16:47","date_gmt":"2019-09-18T20:16:47","guid":{"rendered":"https:\/\/observatoireprocheaidance.ca\/caregiving-knowledge-portal\/riding-the-roller-coaster-of-inflammatory-bowel-disease-a-national-study-of-caregivers-or-individuals-with-crohns-disease-or-ulcerative-colitis\/"},"modified":"2026-07-09T11:08:37","modified_gmt":"2026-07-09T15:08:37","slug":"riding-the-roller-coaster-of-inflammatory-bowel-disease-a-national-study-of-caregivers-or-individuals-with-crohns-disease-or-ulcerative-colitis","status":"publish","type":"knowledge_directory","link":"https:\/\/observatoireprocheaidance.ca\/en\/caregiving-knowledge-portal\/riding-the-roller-coaster-of-inflammatory-bowel-disease-a-national-study-of-caregivers-or-individuals-with-crohns-disease-or-ulcerative-colitis\/","title":{"rendered":"Riding the Roller Coaster of Inflammatory Bowel Disease: a National Study of Caregivers or Individuals with Crohn\u2019s Disease or Ulcerative Colitis"},"content":{"rendered":"\n<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section preset--group--divi-section--divi-transition--default\"><div class=\"et_pb_row_0 et_pb_row et_block_row preset--group--divi-row--divi-transition--default\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough preset--group--divi-column--divi-transition--default\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><p><span data-contrast=\"auto\">This <\/span><b><span data-contrast=\"auto\"><a href=\"https:\/\/www.caregiving.org\/wp-content\/uploads\/2020\/05\/September-2019_National-IBD-Caregiving-Report_digital.pdf\" target=\"_blank\" rel=\"noopener\">report<\/a> <\/span><\/b><span data-contrast=\"auto\">(40 pages) presents survey results on the experiences of caregivers who support a person living with inflammatory bowel disease (IBD). <\/span><span data-ccp-props=\"{}\"> <\/span><\/p>\n<p><span data-contrast=\"auto\">The findings are based on fall 2018 survey data from 728 adult caregivers (age 18 and up) living in the U.S. who reported providing unpaid care for someone with IBD. <\/span><span data-ccp-props=\"{}\"> <\/span><\/p>\n<p><span data-contrast=\"auto\">An <strong><a href=\"https:\/\/www.caregiving.org\/wp-content\/uploads\/2020\/05\/Portrait-of-IBD-Caregiver.pdf\" target=\"_blank\" rel=\"noopener\">infographic<\/a><\/strong> summarizing key data from the report is also available. <\/span><span data-ccp-props=\"{}\"> <\/span><\/p>\n<\/div><\/div><div class=\"et_pb_module et_pb_button_module_wrapper et_pb_button_0_wrapper preset--group--divi-button--divi-transition--default_wrapper preset--module--divi-button--default_wrapper\"><a class=\"et_pb_button_0 et_pb_button et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-button--divi-transition--default preset--module--divi-button--default\" href=\"https:\/\/www.caregiving.org\/wp-content\/uploads\/2020\/05\/September-2019_National-IBD-Caregiving-Report_digital.pdf%20\" target=\"_blank\" data-icon=\"$\">Read the report<\/a><\/div><div class=\"et_pb_module et_pb_button_module_wrapper et_pb_button_1_wrapper preset--group--divi-button--divi-transition--default_wrapper preset--module--divi-button--default_wrapper\"><a class=\"et_pb_button_1 et_pb_button et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-button--divi-transition--default preset--module--divi-button--default\" href=\"https:\/\/www.caregiving.org\/wp-content\/uploads\/2020\/05\/Portrait-of-IBD-Caregiver.pdf%20\" target=\"_blank\" data-icon=\"$\">See the infographic<\/a><\/div><div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><h6><span data-contrast=\"auto\">Curious for more? <\/span><span data-ccp-props=\"{}\"> <\/span><\/h6>\n<p><span data-contrast=\"auto\">A <\/span><b><span data-contrast=\"auto\"><a href=\"https:\/\/www.caregiving.org\/wp-content\/uploads\/2020\/05\/NAC_IBD_DrGuide_042720.pdf\" target=\"_blank\" rel=\"noopener\">guide<\/a><\/span><\/b> <span data-contrast=\"auto\">A guide (8 pages) for caregivers and professionals has been developed based on the data in the report. This guide proposes four strategies to better integrate and support family caregivers who look after a loved one living with inflammatory bowel disease. <\/span><span data-ccp-props=\"{}\"> <\/span><\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>This report (40 pages) presents survey results on the experiences of caregivers who support a person living with inflammatory bowel disease (IBD). <\/p>\n","protected":false},"featured_media":14298,"parent":0,"template":"","format":[49,53],"meta":{"_acf_changed":false,"footnotes":""},"auteur":[740,741],"organisme":[350,742,743],"class_list":["post-13379","knowledge_directory","type-knowledge_directory","status-publish","has-post-thumbnail","hentry","auteur-joe-tomaka-en-2","auteur-michele-j-banner-en-2","organisme-national-alliance-for-caregiving-en","organisme-the-crohns-colitis-foundation-en","organisme-improvecarenow-icn-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO 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