{"id":11862,"date":"2023-12-20T00:00:19","date_gmt":"2023-12-20T05:00:19","guid":{"rendered":"https:\/\/observatoireprocheaidance.ca\/caregiving-knowledge-portal\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/"},"modified":"2026-07-09T11:19:15","modified_gmt":"2026-07-09T15:19:15","slug":"la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique","status":"publish","type":"knowledge_directory","link":"https:\/\/observatoireprocheaidance.ca\/en\/caregiving-knowledge-portal\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/","title":{"rendered":"La cartographie du parcours de vie avec la maladie en partenariat avec les patient(e)s et les personnes proches aidantes : un guide m\u00e9thodologique"},"content":{"rendered":"\n<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section preset--group--divi-section--divi-transition--default\"><div class=\"et_pb_row_0 et_pb_row et_block_row preset--group--divi-row--divi-transition--default\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough preset--group--divi-column--divi-transition--default\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-text--divi-transition--default\"><div class=\"et_pb_text_inner\"><p>This <a href=\"https:\/\/ssaquebec.ca\/nouvelles\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/\" target=\"_blank\" rel=\"noopener\"><strong>methodological guide<\/strong><\/a> (36 pages, in French) is both a reference tool and a practical aid for teams as regards co-building maps of the illness experience with patients, caregivers and the general public. It was created by the Centre of Excellence for Partnerships with Patients and the Public (CEPPP) and the Unit\u00e9 de Soutien SSA Qu\u00e9bec.<\/p>\n<p>The guide presents two complementary approaches to mapping the lived experience of chronic illness in partnership with patients and caregivers \u2014 namely, the life-course-with-illness approach, and care and service trajectories.<\/p>\n<p>The document is divided into four sections:<\/p>\n<ol>\n<li>Definitions of the concepts used to build a shared understanding of the experience of living with illness and of patient and caregiver experiences.<\/li>\n<li>Mapping the care and service trajectories and the experience of living with illness<\/li>\n<li>Methodology (two co-design methods)<\/li>\n<li>Additional tools and resources<\/li>\n<\/ol>\n<\/div><\/div><div class=\"et_pb_module et_pb_button_module_wrapper et_pb_button_0_wrapper preset--group--divi-button--divi-transition--default_wrapper preset--module--divi-button--default_wrapper\"><a class=\"et_pb_button_0 et_pb_button et_pb_bg_layout_light et_pb_module et_block_module preset--group--divi-button--divi-transition--default preset--module--divi-button--default\" href=\"https:\/\/ssaquebec.ca\/nouvelles\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/\" target=\"_blank\" data-icon=\"$\">Read the guide (in French)<\/a><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>This methodological guide (36 pages) is both a reference tool and a practical aid for teams as regards co-building maps of the illness experience with patients, caregivers and the general public. <\/p>\n","protected":false},"featured_media":11854,"parent":0,"template":"","format":[49],"meta":{"_acf_changed":false,"footnotes":""},"auteur":[],"organisme":[442,510],"class_list":["post-11862","knowledge_directory","type-knowledge_directory","status-publish","has-post-thumbnail","hentry","organisme-centre-dexcellence-sur-le-partenariat-avec-les-patients-et-le-public-ceppp-en","organisme-unite-de-soutien-ssa-quebec-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - 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