{"id":11862,"date":"2023-12-20T00:00:19","date_gmt":"2023-12-20T05:00:19","guid":{"rendered":"https:\/\/observatoireprocheaidance.ca\/caregiving-knowledge-portal\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/"},"modified":"2026-01-27T10:35:45","modified_gmt":"2026-01-27T15:35:45","slug":"la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique","status":"publish","type":"knowledge_directory","link":"https:\/\/observatoireprocheaidance.ca\/en\/caregiving-knowledge-portal\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/","title":{"rendered":"La cartographie du parcours de vie avec la maladie en partenariat avec les patient(e)s et les personnes proches aidantes : un guide m\u00e9thodologique"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>This <a href=\"https:\/\/ssaquebec.ca\/nouvelles\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/\" target=\"_blank\" rel=\"noopener\"><strong>methodological guide<\/strong><\/a> (36 pages, in French) is both a reference tool and a practical aid for teams as regards co-building maps of the illness experience with patients, caregivers and the general public. It was created by the Centre of Excellence for Partnerships with Patients and the Public (CEPPP) and the Unit\u00e9 de Soutien SSA Qu\u00e9bec.<\/p>\n<p>The guide presents two complementary approaches to mapping the lived experience of chronic illness in partnership with patients and caregivers \u2014 namely, the life-course-with-illness approach, and care and service trajectories.<\/p>\n<p>The document is divided into four sections:<\/p>\n<ol>\n<li>Definitions of the concepts used to build a shared understanding of the experience of living with illness and of patient and caregiver experiences.<\/li>\n<li>Mapping the care and service trajectories and the experience of living with illness<\/li>\n<li>Methodology (two co-design methods)<\/li>\n<li>Additional tools and resources<\/li>\n<\/ol>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/ssaquebec.ca\/nouvelles\/la-cartographie-du-parcours-de-vie-avec-la-maladie-en-partenariat-avec-les-patientes-et-les-personnes-proches-aidantes-un-guide-methodologique\/&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Read the guide (in French)&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-14px||0px||false|false&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This methodological guide (36 pages) is both a reference tool and a practical aid for teams as regards co-building maps of the illness experience with patients, caregivers and the general public. <\/p>\n","protected":false},"featured_media":11854,"parent":0,"template":"","format":[49],"meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"auteur":[],"organisme":[442,510],"class_list":["post-11862","knowledge_directory","type-knowledge_directory","status-publish","has-post-thumbnail","hentry","organisme-centre-dexcellence-sur-le-partenariat-avec-les-patients-et-le-public-ceppp-en","organisme-unite-de-soutien-ssa-quebec-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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